Robert's Sister

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent.

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Articles

Making Technology Simple, Today's Caregiver Newsletter, June 30, 2011


Finding Support for Hereditary Neuropathy, Caregiver.com, CMT Channel


The Decision, Fearless Caregiver Newsletter, April 5, 2011


When a Loved One Needs a Skilled Nursing Facility, Today's Caregiver, July/August 2009, Caregiver Newsletter, September 2, 2009
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Books for the Caregiver

  • Amazon
  • Lulu

365 Caregiving Tips: Practical Tips From Everyday Caregivers

Forever a Caregiver, by Trish Hughes Kreis

Tell Your Story

Do you want to tell your caregiving or epilepsy story? I would love to talk to you! Email me at robertssister@att.net and I will publish an interview with you. Telling our own story helps others while also helping ourselves. I look forward to hearing from you! Trish
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Epilepsy Facts and Resources

  • 2012: Epilepsy Resources and Facts
  • 2015: 30 Epilepsy Facts
  • Dental Implications of Epilepsy: Courtesy of Epilepsy Association of Calgary
  • First Aid for Seizures: Complex Partial Seizures Courtesy of Epilepsy Foundation of Greater Los Angeles
  • First Aid for Seizures: Tonic Clonic Seizures Courtesy of Epilepsy Foundation of Greater Los Angeles

Tools to Help Find the Right Care Facility

  • California Advocates for Nursing Home Reform
  • Questionnaire - PDF to help the search

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Tweets by @robertssister1

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Popular Posts

  • Epilepsy Awareness Month: Advocating for Awareness and Answers - Interview with CURE
    November is Epilepsy Awareness Month! While I try to advocate and spread awareness and education year-round, it is always exciting to give a...
  • Epilepsy Scholarships
    This is the time of year when students find out which colleges they’ve been accepted into (with the arrival of the coveted large envelope) o...
  • Epilepsy Awareness Month: CTE and Epilepsy – Making the Connection
    The connection between blows to the head (even those not resulting in a concussion) and Chronic Traumatic Encephalopathy (CTE) is clear tha...
  • I am Going to Yelp!
    Now that work is back to the “usual busy” instead of the “I’m losing my mind busy,” I am catching up on the non-urgent appointments for Rob...
  • Garage Conversion -- On hold (for now)
    It’s difficult for me to admit defeat so I’m just going with “on hold.”     We have overcome many roadblocks so far but we just can’t overco...

About Me

Trish Hughes Kreis
View my complete profile

Resources

  • 365 Caregiving Tips
  • Alta California Regional Center
  • California Dept of Health Care Services (Medi-Cal information)
  • Caring 4 Our Kids
  • Chelsea Hutchison Foundation
  • Epilepsy Foundation
  • Medicare
  • National Family Caregivers Association
  • Nursing Homes Abuse
  • Senior Living FAQ
  • The Family Caregiver Alliance
  • Today's Caregiver
  • U.S. Social Security Administration

Links

  • Ableize -- has disability and mobility covered
  • Blog Catalog

My Blog List

  • A Day in The Life...
  • Inspired Art and Living with Fiona Stolze
  • Living with a Thief named Lewy Body Dementia
  • PickYourPain.org
  • SandwichINK for the Sandwich Generation
  • Steve's a Pain
  • The Intentional Caregiver
  • The Purple Jacket
  • Thoughts From A Broad
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Contact Info

Trish Hughes Kreis

robertssister@att.net

Robert's Sister

Caregiving. Family. Advocacy.
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