I
am thrilled to have Tiffany Kairos in our space today! Tiffany was gracious
enough to talk with me for our Advocating for Awareness and Answers series in November
2013 and I am grateful she is participating in the 2016 Epilepsy Awareness
Month "Life with Epilepsy" follow-up interviews.
 |
| Tiffany Kairos shares her Life with Epilepsy |
Tiffany
and I have never met in person but getting to know her through her advocacy
work, social media and these interviews has been such a delight! Tiffany is a kind,
faith-driven, family-focused and strong advocate for those with epilepsy as
well as those less fortunate.
She
would never describe herself this way (because she is way too nice and polite
to do so) but she is definitely a badass! Epilepsy, discrimination against
those with epilepsy and any kind of bullying doesn’t stand a chance against
this woman.
I
think you will agree once you read more about Tiffany.
Robert’s Sister:
I interviewed you in November 2013 and I am curious what changes have occurred
in the last three years. What is the most significant change in your life since
our last interview?
Since
our last interview, I had much testing conducted and discovered that my type of
epilepsy is Refractory
Epilepsy. This gave me peace in knowing and motivation to fight back.
Robert’s Sister:
Tell us about your advocacy work on behalf of those with epilepsy.
I'm
the founder of the organization The
Epilepsy Network (TEN), working passionately and diligently to provide
education, awareness and community for all affected by epilepsy.
Robert’s Sister:
What progress do you see in the treatment and research of epilepsy?
Each
day, progress in the field of medicine and treatment is evolving and I am
pleased to see this. I see more options becoming available for those who are
running out of medicinal options or who would rather choose a more holistic
route.
Robert’s Sister:
What has been your favorite moment these last three years?
It's
very difficult to choose just one favorite moment when there have been so many
wonderful moments throughout these last three years. However, I would most
likely have to say the moment I was given the opportunity to share my story on
video for my church community and the world to see and having the opportunity
to illuminate our town’s bridge in purple light.
(Note
from Robert’s Sister: Grab the tissues and watch Tiffany’s inspirational video
about her story here.)
Robert’s Sister:
What do you see for yourself in the next three years?
I
can't say for certain; however, I know that whatever it is, wherever we are,
God will be with us and epilepsy awareness will without a doubt be involved.
Robert’s Sister:
Is there anything else you want to say?
I
would like to tell anyone who is affected by epilepsy in any way that some of
the most challenging situations we face in our lives are in fact refining us
into much stronger, braver, bolder individuals. Hold onto hope. Don't ever let
go no matter how hard things get.
Robert’s Sister:
Please tell us how we can contact your organization.
You
can contact The Epilepsy Network at www.theepilepsynetwork.com.
Tiffany didn’t mention this in
her interview but I am happy to share that Tiffany was chosen as a finalist in
the WEGO
Health Awards, Best in Show: Twitter category. Be sure to follow Tiffany on
Twitter! You can find her on Facebook as well.
Tiffany is a fighter and we wish
nothing but great things for her and her husband, Chris. Thank you so much,
Tiffany, for sharing your advocacy work and your story!
Trish
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