Epilepsy Awareness Month: Follow-up Interview with Robert

Robert is a man of few words but sometimes what he says really makes an impact. I interviewed him four years ago during Epilepsy Awareness Month and his answers were short but they gave me (and I hope others) a glimpse into how his mind works. He is a very positive person who can best be described as content. He is just a happy guy. He wasn’t always like this but I like who my brother has grown to be and have learned a lot from him.

Robert and his word search

From my perspective, a lot has changed in the four years since I last interviewed him. I was curious if he thought so to.

Robert’s Sister: I am curious what changes have occurred in the last four years.  Please remind us how epilepsy has affected your life.

I was born with epilepsy.

Robert’s Sister: What is the most significant change in your life since our last interview?

I’m doing more activities. I walk around the room a little bit.

Robert’s Sister: Has the treatment changed for you?

Not really.

Robert’s Sister: What sort of cognitive, intellectual, emotional or physical changes have you noticed these last four years?

My behavior has gotten a lot better. I think a lot better than I used to.

Robert’s Sister: What caregiving help do you use?

I don’t need much help but some people do help me.

Robert - Always with a word search book

Robert’s Sister: Do you think your life with epilepsy has improved, stayed the same or become worse these last four years? Can you tell us why you think so?  

It’s gotten a lot better. I have not had as many seizures now. The seizures I have are minor. I don’t have the grand mal seizures anymore.  

Robert’s Sister: What has been your favorite moment these last four years? What is your favorite moment or thing?

My word search book is one of my favorite things. My friends are my favorite too and playing games with my friends.

Robert’s Sister: What do you see for yourself in the next four years?

Probably I’ll get healed completely.

Robert Wright: Happy and Content

Robert’s Sister: Is there anything else you want to say?

I love doing word search books. (Long pause.)

I love shooting pool too. I’m happy I remembered that! (He laughed while saying this.) 

  

Simple. Content. Happy. Hopeful.

It doesn’t get any better than that.

Trish