Being organized gives me a sense of relief and peace. I can breathe a little easier when I know the
briefs are in the same cabinet as they were last week and the extra toothpaste is
on a shelf that I can direct Richard to when Robert is asking for more.
Sample One Page Info/Distribution Sheet |
I feel confident when handing a seizure log to Robert’s
neurologist and we can have a discussion about his increased seizures and what
it means. The most recent revelation has been that Robert’s seizures increase
in the fall/winter and that this is an actual “thing.”
It may sound crazy but spreadsheets make me happy.
Excel is my preferred program for creating spreadsheets
because it is easy to update and several worksheets can be created within the
same document. For instance, I keep a distribution sheet for Robert which is the
first one discussed in the video and the one that has all of Robert’s pertinent
information on it. This distribution sheet is just one page of a several page
Excel file that also includes a page for prior medications, all physicians and
specialists, prior physicians and specialists as well as a few other pages of
information.
Richard also has a distribution sheet for his mom and for
himself. I keep several copies of Robert’s spreadsheet in my purse and at the
house in the event we need a copy to give paramedics or emergency room
personnel.
Other spreadsheets I keep for Robert include a vitals log
and an “all symptoms” log. While I know
I can’t control whether Robert gets pneumonia and sepsis, I can keep track of
his vitals on a daily (or more frequent) basis. Because I take his vitals daily
and at generally the same time each day, I know his baseline. When his blood pressure drops or his pulse is
super high then I am extra vigilant (and increase the number of times I take
his vitals). The goal is to catch an
illness before it gets out of control.
The real goal is to keep Robert out of the hospital!
I am happy to share sample spreadsheets if these would be
helpful in your caregiving situation. I am a big believer in efficiency and there
is no reason to recreate something unnecessarily. The samples could very simply
be revised to fit your own situation. Please leave a comment if you would like
a copy of any of these spreadsheets.
Good luck with keeping organized and enjoy your spreadsheets! I hope they make you as happy as they do me. (Yep,
still sounds crazy.)
Thanks for watching and helping to spread epilepsy awareness!
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