Robert came into the hospital last Tuesday.
I am pretty sure today is Monday and, yep, we’re still here.
Rocky Road makes the wait much easier |
Anyone who has spent any time at all in the hospital or
visiting anyone in the hospital or knows anything about hospitals knows there
is one constant: waiting.
We are waiting for an MRI with sedation (because Robert has
back pain when he is lying flat so can’t stay still during the test).
We are waiting to find out what is causing his rapid decline
(why he can’t walk; why he is sleeping all the time; why he can barely circle
his words on his Word Search puzzles).
We are waiting for doctors and blood work results and
theories.
We are waiting for physical therapists, occupational
therapists, answers and a plan.
On Tuesday we waited for eight hours in the Emergency Room
before being admitted and getting wheeled to his current room. We have had
longer waits in the Emergency Room so eight hours seems long but not unheard
of.
What kind of crazy world do we live in that an eight hour
stay in the Emergency Room doesn’t seem too bad?
I think the problem was we came into the ER on a Saturday
night. Oh, wait, no – we came in on a
Tuesday afternoon. A Tuesday afternoon
and Robert was first put in a hallway and eventually a room.
Where we waited and the doctors ignored my insistence they
call the neurology team which is what his neurologist wanted. She specifically told me the team would be
notified before I even brought him to the ER!
Call them, please!
It took four hours for the doctors to finally decide to call
the neurology team and this was after me asking them to do so; telling them to
call them; calling them myself and finally unloading on a medical student (who
had repeatedly told me she was a fourth year med student).
Congratulations!
You’re in your fourth year of medical school! Let me just ask you to
please, please listen to the caregivers when they give you information. Caregivers know their caree. Caregivers will give you all sorts of
information about what is baseline for this person you’ve never seen
before. Since you’re a student, it is a
good thing to learn early on that caregivers can be a huge help and resource to
you! Now, Please. Call. Neurology.
I felt better after giving my little speech.
And neurology showed up soon after.
While Robert and I waited in the ER, Richard arrived with
new energy and a smile.
What a welcome sight!
Richard went to get us food which turned out to be the best
grilled cheese sandwich I’ve ever had.
(Although it could have been the starvation influencing my
judgment.) Regardless, I was beyond
grateful for Richard getting us the food so I wouldn’t miss the opportunity to
talk to the doctors.
Robert tried to pass the time working on his puzzle book but
had trouble circling the words. He slept
during part of the wait and I stepped into various hallways on a search for
internet access. I finally was able to
text by creating the text then holding my phone up in the air in a particular
hallway and sending.
Whatever works.
Waiting allows me time to find these creative solutions.
Waiting also gave me time to talk to Robert to ask him silly
questions. He had a purple band on his
wrist which the hospital had put on him upon arrival.
I like the color purple, Robert!
“I do too.”
What is your favorite color?
“Blue. I like yellow too. And purple.”
I knew he loved blue but didn’t realize he liked yellow and
purple.
What is your favorite food?
(Of course, I expected to hear “cheeseburger” or “combination pizza.”)
“Steak and Lobster.”
Wow! Someone likes to live high on the hog!
What is your favorite drink? (This is an easy one – he’ll say chocolate
shake for sure!)
“Sprite.”
What? Anything else?
“7-Up.”
Well, okay, but I still think chocolate shake is his
favorite drink!
What is your favorite dessert? (Everyone knows this answer!)
“Chocolate candy.”
Oh goodness. Robert
must be really sick if he doesn’t even rank Rocky Road ice cream as his
favorite dessert!
What about ice cream?
“I love ice cream.”
What kind?
“Chocolate.”
The long wait is obviously turning his brain to mush.
What about Rocky Road?
Robert's eyes lit up.
“I LOVE Rocky Road ice cream. It is deeee-LISH-us.”
We eventually made it out of the ER and into a room.
Where we wait for an MRI with sedation and answers and
theories and plans.
And where I sneak in a little bit of Rocky Road to help with
the wait.
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